Gastroparesis: Weight Gain, Feeding Tubes, and TPN
Gastroparesis and Weight have been a big deal recently. I have received many disturbing doctor’s medical “treatment” to several people with Gastroparesis, and some of the diabetic. A friend of mine messaged me, really concerned, because her doctor told her that he would not treat her for Gastroparesis unless she lost weight first, and that she was too heavy for Gastroparesis. His medical expertise basically told her to starve herself, and she is diabetic! He also told her that the body going into, “starvation mode” was not a real thing. I can tell you, definitively, that your body does go into a starvation mode setting when you are not eating. I gave her some advice, and she’s filing complaints, as she should do. I am very glad that she questioned what she was told, instead of taking it on faith that what he was saying was true, because he was a doctor, and in a position to “treat” patients after many, many years of education.
Let me make this very clear, I do not disparage doctors one bit, but even though there is more information about Gastroparesis online now, than when I was diagnosed in 2012, I do think they need to brush up on their education with illnesses like Gastroparesis, Fibromyalgia, Lupus, etc. I respect doctors and I know they diagnose by ruling things out, but there are always a few bad apples in every field, medicine included.
To the people who have gained weight with Gastroparesis, instead of losing weight, please do not be discouraged, like your illness is not founded. I have had so many messages in the past three weeks telling me of people’s doctors refusing to treat them for their Gastroparesis, unless they lose weight first, or worse. Question everything they tell you, and if you have a doctor like this, please try to find another doctor. Do your own research, start a GP journal. Do not let a few bad doctors destroy your faith in doctors because there are some great ones out there. Don’t give up!
I explore this subject more in the article I am writing and go into detail of why you gain weight with Gastroparesis and what is happening inside your body that causes it to do so. Plus, weight, like this, has NOTHING to do with Gastroparesis. You can still have vagus nerve damage, even if you are on the heavier side of Gastroparesis. I have lost close to fifty pounds, but I am still on the heavy side of Gastroparesis. That does not make me any less sick, and does not negate my Gastroparesis. Please do not feel alone, or that your Gastroparesis is any less than someone with Gastroparesis with a feeding tube. First off, it’s not a competition, we are all sick. Secondly, all of that does not matter anyway because you are still sick. I hope that you will email your stories to me and fill out the questionnaire. I can sympathize because my weight my throw people off, but it does not stop me from vomiting daily. People come in all shapes and sizes, just like Gastroparesis comes in different forms or levels (I call them different levels in my head).
If you have a story similar to this, that you would be comfortable enough to share (keep in mind that you can tell me to change your name(s) in the email of your story that you would share), you can email me your stories at: firstname.lastname@example.org.
I always try to protect privacy in my blog articles, since my articles are public. My website and blog are copyrighted, so no one can share information you share with me without my consent, because I do my absolute best to not violate any trust you have in sharing photos or your personal information with me. My questionnaires I have, and I really don’t know why I haven’t thought to do them more since I used them all of the time when I was president of my fraternity chapter, are set up so only I can see the results, no one else. I just wanted you to know that in case there were any questions or doubt, and you can email me questions you may have at any time.
I want to have these articles done as soon as I can. I just want to get different people’s experiences regarding feeding tubes and TPN, since I can offer no personal experiences on the matter, just research. I would like to mix the personal experiences with the research, so people who are trying to make a decision about a certain feeding tube or going on TPN for the first time, have research and personal experience/advice on the subject. I have only had one response for TPN at the moment, on the questionnaire, so if you are on TPN, can you please share your story, along with any advice or tips someone may need regarding TPN?
To those of you who have already sent in your story on feeding tubes to my email address (and I haven’t forgotten those who have sent it a while ago either, thank you, by the way, for your patience), I appreciate it. I cannot tell you whose life you may impact through your experiences and advice/tips. I know the questionnaires probably do not cover a lot of things, because like I have said before, I have no personal experience with feeding tubes or TPN at all, but if I have missed anything that you feel is vital to someone thinking of getting the same tube you have, please email that to me.
Thank you to those of you who have filled out these questionnaires, thank you to those of you who have sent in your stories months ago and recently, and thank you all for everything you do to help the Gastroparesis Community. I cannot tell you how many people’s lives you might impact.
The Surveys are Listed Below:
This is the first of the surveys about Weight and GP:
The next survey is about Feeding Tubes:
The last survey is about TPN: